ECFS

Cystic Fibrosis Neonatal Screening in Europe

Priorities for a Consensus Document
Carlo Castellani - Slide Presentation
Towards a consensus on the investigation and management of infants with an equivocal diagnosis following newborn screening for Cystic Fibrosis
S Mayell et al - Poster Presentation
Survey of the information provided for parents about newborn screening for CF in European programmes
Anne Munck et al - Poster Presentation

29^th ECFConference, Copenhagen
Saturday June 17 12.30-14.00, 2006

Agenda

Overview of last year’s activities - Slide Presentation
Carlo Castellani, Italy
Information Branch: European survey preliminary results France neonatal screening programme
Anne Munck, France
Positive Results Processing Branch: sweat test, pathway for difficult diagnoses UK neonatal screening programme - Slide Presentation
Kevin Southern, UK
Outcome Branch: neonatal screening costs evaluation the Netherlands neonatal screening programme
Jeanette Dankert-Roelse, the Netherlands - Slide Presentation

28th ECFConference,Creta Maris Conference Centre, Minos East room
Friday, June 24 12.30-14.00, 2005

Agenda:

Aims of the working group
Results of the European survey on CF neonatal screening practice
Presentation of working subgroups and of their fields of interest
- Lab branch: protocols, IRT, quality assurance
- PRP (Positive Result Processing) branch: sweat test, diagnostic criteria, borderliners, carriers
- Outcome branch: clinical follow-up criteria, cost-effectiveness, benefits and drawbacks
- Information branch: informed consents, information for parents of screened newborns, recalled newborns, affected and carriers
Future developments
Discussion

Speakers

Carlo Castellani
Jeanette Dankert-Roelse
Kevin Southern

(Slide presentations are in pdf format and will need Acrobat Reader installed on your computer to view)