EUROPEAN CYSTIC FIBROSIS SOCIETY (ECFS)
 

European CF Registry

INDEX

• Introduction
   

• Guidelines for The European Cystic Fibrosis Registry (ECFR)
   
• Steering Committee
   
• List of patient variables to be collected for Registry including definitions
   

• Ethics and Patient Confidentiality Issues
  (associated documents)

  • Consents - Explanatory Information
  • Sample Patient Information Sheet
  • Sample Patient Consent Form
     

• Annual Reports

• Meeting Reports
   

• Link to EuroCareCF Registry Work package 2