EUROPEAN CYSTIC FIBROSIS SOCIETY (ECFS)
(formerly known as the European Working Group for Cystic Fibrosis)

Date of last modification of site : 28th April 2008

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Society Details
History
The Board
The Constitution
The ECFS Handbook
Application for membership
Membership subscription renewal

ECFS Supported Initiatives
European CF Registry
ECFS Neonatal Screening Working Group
ECFS Diagnostic Network Group
ECFS Clinical Trial Network

Pan European Studies
Invitation to participate in a Pan European study on Pancreatitis in CF: Prevalence and Outcome

Publications
The Journal of Cystic Fibrosis
Consensus Reports.
The ECFS Newsletter

Meetings & Awards Current and Future Meetings
Previous Meetings Presentations.   
 
ECFS Award
ECFS Awards at the ECFC

Organisations
EuroCareCF

Web sites
Other WWW sites of Interest

 

 

Welcome To the ECFS Web Page

Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis

The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease.

Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care.

 

For general information or enquiries
 
e-mail: info@ecfsoc.org
phone: +45 8667 6260
fax: +45 8667 6290
mail: European CF Society
Kastanieparken 7
7470 Karup
Denmark

Notice Board
Adult, a life, family and friends, a job …and CF

The "Belgian Contact Group of Cystic fibrosis" would like to invite you to their next meeting entitled above.

The meeting will be will be held on Friday, May, 23rd, 2008 in the afternoon at the Hilton Hotel in Brussels (38 blvd de Waterloo, 1000 Brussels) (usual venue). A small lunch will be provided before the symposium starting at about 12:30 H.  Accreditation of this activity has been asked for.

Details of the meeting can be accessed here


 

Society News:
ECFS Diagnostic Network:
Change of Case submission date to
28th May 2008
for the meeting in Prague, 11th June (see below for details)

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Basic Science Conference, Douro, Portugal, 9th-13th April 2008
Programme and meeting abstract available as pdf file.  Click here to access documents
28/04/2008

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Newsletter Issue 26
The April 2008 issue of the newsletter is now available and includes the nominations for the  for the President and two Board members. 
Click here to access
28/04/2008

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2008 ECFS Award
The ECFS is delighted to announce that the recipient of the 2008 ECFS award is:

Prof. Véra Vavrova.
Prague, Czech Republic.

28/04/2008

ECFS Registry
Update of patient's criteria to be collected together with consensus definitions. Click here to access documents.
27/04/2008

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ECFS Diagnostic Network:
For a summary of the 4th annual conference, Hanover
Click here

The next meeting will be held in Prague on the day of the Opening Ceremony, June the 11th from 14:30 until 16:30.  During this joint EUROCARECF WP3 Diagnostic group/ ECFS Diagnostic Working Group meeting, it is intend to discuss any diagnostic problem, clinical, laboratory and genetic tests which are not clear to the clinician

We invite all members of the ECFS to participate to the meeting and submit interesting diagnostic difficulties for discussion.

Cases should be submitted in an abstract format (max number of words: 500) with a clear outline of the issue to be discussed.

When submitting your input, please provide your full address, name of Institution, telephone/fax and email information.

Cases should be emailed to the ECFS Office, info@ecfsoc.org no later than
28th May 2008.
10/03/2008

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ECFS-CTN
The ECFS Clinical Trials network is launched for details see ECFS-CTN site
20/11/2007

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Consensus documents
Three consensus documents published between 2002 and 2007 are now available as a free download
Click here for details

05/03/2008

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ECFS Neonatal Screening Working Group
Presentations given during the meeting of the above group during the 30th ECFC, Belek, Turkey, June 2007 are now available. 
Click here

03/07/2007

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The ECFS web page is managed on behalf of the Board of the ECFS by Dr H C Ryley